Campaigners are calling for the Health Minister to approve a life-changing drug for people suffering from a rare muscle disease.
Irish sufferers of Spinal Muscular Atrophy (SMA) are meeting with TDs in Leinster House today to make the case for the drug called Spinraza.
The treatment's the first drug that can alleviate the muscle wasting condition.
Spinraza is now available in 19 EU countries but not in Ireland.
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Jonathan O'Grady from SMA Ireland says the drug can transform the lives of children with the condition.
"A patient who previously could only lie on the floor and roll could now potentially stand and maybe even take a step," he said.
"A patient who before could only sit up straight might now be able to crawl."
Digital Desk
